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  • What is Ichthyosis?
    • Causes
    • Ichthyosis
      • Bullous Ichthyosis (also called bullous ichthyosiform erythroderma (BIE) or epidermolytic hyperkeratosis (EHK))
      • Collodion Baby
      • EKV (erythrokeratoderma variabilis)
      • Harlequin Ichthyosis
      • Ichthyosis Vulgaris
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      • Netherton’s Syndrome
      • Non-Bullous Ichthyosiform Erythroderma (also called “congenital ichthyosiform erythroderma”)
      • Overview of ichthyosis
      • Palmoplantar keratoderma (PPK)
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      • X-Linked Ichthyosis
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Donate here

Please support ISG by donating an affordable amount. You may like to make a one-off donation or regular monthly payments.

ISG Online Shop

Raise awareness by purchasing ISG merchandise. Badges, Keyrings, and Pens are some of the items available

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To register and benefit from our regular Newsletters, E Bulletins, Events and relevant literature please click here.

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Current activities

  • Female participants needed for X-linked ichthyosis research

    Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.


  • Tell us Your Story

    Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.


  • Birmingham based X-linked physical development study

    Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.


  • Support our fundraisers by sponsoring them online.

    Click here to find out who is fundraising for the ISG!


One of our conferencesTrip for the children on the London Duck Tour during the London conferenceOur Family Day in 2012 was held at Old Trafford, home to Manchester United FCYoung members raiaisng awareness and funds during a fundraiaisng event.

Featured Articles

Products

Aqueous Cream and SLS

Emollients (moisturisers) soothe, hydrate and protect the skin. Long-term emollient therapy is the main treatment for dry skin conditions (xerosis, ichthyosis and eczema). Emollients should be unperfumed and prescribed in adequate quantities and in a formulation (cream, ointment, oil, soap substitute) acceptable to the user. Aqueous cream (AC) has been used for 60 years as [...]


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ISG Lottery

The ISG Unity Lottery, sign up and start playing today! Win up to £25,000 with the ISG’s weekly lottery.  Join our lottery and help us continue to support people with all forms of ichthyosis. The Ichthyosis Support Group (ISG) is offering you the chance to win £25,000 every Saturday for just a pound a week.  Winners [...]


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Research – Participants Needed

Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Work undertaken at Cardiff University has recently suggested that women who have reduced levels of the molecule steroid sulphatase may be at increased risk of developing postnatal mental health problems. In order to see whether this [...]


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Easyfundraising

Shop online and raise money! It’s the easiest way to help raise money for Ichthyosis Support Group! If you already shop online with retailers such as Amazon, Asda, M&S, Argos, Tesco, John Lewis, eBay, Play.com and many many more, then we need you to sign up for free to raise money while you shop! Watch this video [...]


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Changing Faces – Look at Me Campaign – Download the Preliminary Report here!

View the Look at Me preliminary report 2012  here. The final campaign report will be published in 2013   Look at Me is the campaign led by Changing Faces, the UK wide charity supporting and representing people with conditions, scars and marks which affect their appearance.  The aim of the campaign is to ensure that people with [...]


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Contact a Family Launches Counting the Costs 2012

Contact a Family have just launched their latest research Counting the Costs 2012 Following a survey they conducted earlier this year.  Findings show that families are going without essentials, such as food, heating and clothing, and getting into debt before the full impact of benefit cuts is felt. 58 per cent of families fear their financial [...]


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