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ISG Go Karting Challenge, London, April 2018
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Events & Fundraising

National conference, fundays and fundraising events. Donations are the life blood of our organisation

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Your donation will contribute to the support offered by the ISG

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What is Ichthyosis

Ichthyosis, pronounced Ick-thee-o-sis (which comes from the Greek word meaning ‘fish’) describes a group of conditions in which the skin is dry and scaly

Research

Advance the education of ichthyosis and its implications for the family

Featured Articles

Fundraising Pack

We are delighted to introduce you to our new fundraising pack in line with our fundraising drive during the ISG’s 20th Anniversary Year 2017.  We […]

Corporate Charity Support Pack

Make a difference with us The Ichthyosis Support Group (ISG) is delighted to introduce you to its Corporate Social Responsibility (CSR) Strategy for the business […]

School Pack – Coping with Ichthyosis at Pre-School and Primary School

We are very proud to launch our School Pack – Coping with ichthyosis at Pre-School and Primary School. This document is the first of its […]

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About The ISG

The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics, and became a UK registered charity in 2001. In 2011 the ISG became a company limited by guarantee, registered in England and Wales, company registration number 7609904 and new registered charity number 1142457 (formerly 1084783).

Our Trustees

Paul Sue Maggie Ray Andy Sarah Liz Mandy

Facebook Feeds

Ichthyosis Support Group

3 days ago

Ichthyosis Support Group

Team places are running out.... just a few remaining!
Could you get a team of 5 together to go Karting? We are thinking ahead to our fundraising activities for 2018 and we would like to hear from you! We are proposing a fast paced charity event at Capital Karts, London which is a must for any karting enthusiasts, petrol heads and charity challengers alike. Teams of up to 5 drivers register to take part in a Le Mans style, 3 hour endurance race, enjoy the thrill of the drive and raise much needed funds to help us in our mission to support those living with ichthyosis. We need a minimum number of teams to show interest for this event to take place and individuals or teams can either pay or get sponsored to take part. For more information and to register your interest please use the following link www.eventbrite.co.uk/e/register-your-interest-go-karting-challenge-london-april-2018-tickets-3918...
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Register Your Interest - Go Karting Challenge, London, April 2018

eventbrite.co.uk

This fast paced charity event at Capital Karts, London is a must for any karting enthusiasts, petrol heads and charity challengers alike. Teams of up to five drivers take part in a Le Mans style 3 hours endurance race, enjoy the thrill of the drive and raise much needed funds to help us in our missi...

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Ichthyosis Support Group

4 days ago

Ichthyosis Support Group

Exciting research news for EB patients.
www.bbc.co.uk/news/health-41914101
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'Butterfly child' given life-saving skin

bbc.co.uk

Hassan was born with skin so delicate it would tear and blister

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Ichthyosis Support Group

4 days ago

Ichthyosis Support Group

Could you get a team of 5 mates, family or work colleagues together to go Karting? We are thinking ahead to our fundraising activities for 2018 and we would like to hear from you! We are proposing a fast paced charity event at Capital Karts, London which is a must for any karting enthusiasts, petrol heads and charity challengers alike. Teams of up to 5 drivers register to take part in a Le Mans style, 3 hour endurance race, enjoy the thrill of the drive and raise much needed funds to help us in our mission to support those living with ichthyosis. We need a minimum of 20 teams for this event to take place and individuals or teams can either pay or get sponsored to take part. For more information and to register your interest please use the following link www.eventbrite.co.uk/e/register-your-interest-go-karting-challenge-london-april-2018-tickets-3918... ... See MoreSee Less

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Ichthyosis Support Group

4 days ago

Ichthyosis Support Group

Living Well With A Skin Condition course
m.facebook.com/story.php?story_fbid=1498901906861073&id=147764368641507
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Living with a skin condition can make life difficult and stop you doing things you enjoy. Our new Living Well with a Skin Condition course can help you realise you’re not on your own, learn new skills and enjoy life again. It is a 5 session course with weekly sessions. First course starts Thursday 16 November 2017. Book your free place now at iaptsheffield.shsc.nhs.uk/physical-health-wellbeing/ or call 0114 2716568

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Ashenafi Dejene

6 days ago

Ashenafi Dejene

hi this is Ashe my son is one of z family of yours but he is knew and 6 years old please help him ... See MoreSee Less

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The Ichthyosis Support Group is not responsible for content within external websites
© Copyright 2015 Ichthyosis Support Group (ISG) Registered Charity Number: 1142457 | Website developed by Mike Davies (Trustee)
Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904