Featured Articles
Rare Disease Day 2012
Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level. February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of [...]
eBay for Charity
Are you clearing out the clutter? Making room for those Christmas presents or recycling the ones you don’t want? Why not sell your items on eBay? eBay for Charity is an easy way for buyers and sellers on eBay.co.uk to support the Ichthyosis Support Group. Buyers can shop for items knowing they’re supporting a good [...]
X Linked Study based in Birmingham – participants needed from the UK
The University of Birmingham and Birmingham Children’s Hospital have jointly set up a research study in boys and men, aged 6 to 30 years, with X-linked recessive ichthyosis (XLI). People with XLI lack steroid sulfatase, a substance with a role in the skin and also in the production of certain hormones. The research team want [...]
ISG’s online shop
The ISG has an online shop. You can easily browse and purchase merchandise directly through the website. NEW trolley coins, and of course many of your favourite ISG merchandise items such as Pin Badges, Pens, Keyrings etc are available. Visit our online shop today! To go directly to the shop please click here.
2011 Ichthyosis Support Group/British Skin Foundation Small Grant
The Ichthyosis Support Group (ISG) was delighted to team up with the British Skin Foundation (BSF) to award a joint grant of £10,000 for 2011 towards research into helping individuals living with ichthyosis. From the applications received the ISG’s Medical Advisory Board, and advvisors from the BSF decided the grant should be given to the [...]
Incorporation of the ISG
Those who attended the Annual General Meeting held during the Funday at Thorpe Park in September 2010 will recall we announced our plans for the next development of the ISG by becoming an incorporated charity. This would result in registration not only with the Charity Commissioners but also on the Companies Register. We had been [...]