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  • What is Ichthyosis?
    • Causes
    • Ichthyosis
      • Bullous Ichthyosis (also called bullous ichthyosiform erythroderma (BIE) or epidermolytic hyperkeratosis (EHK))
      • Collodion Baby
      • EKV (erythrokeratoderma variabilis)
      • Harlequin Ichthyosis
      • Ichthyosis Vulgaris
      • Lamellar Ichthyosis
      • Netherton’s Syndrome
      • Non-Bullous Ichthyosiform Erythroderma (also called “congenital ichthyosiform erythroderma”)
      • Overview of ichthyosis
      • Palmoplantar keratoderma (PPK)
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      • X-Linked Ichthyosis
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Donate here

Please support ISG by donating an affordable amount. You may like to make a one-off donation or regular monthly payments.

ISG Online Shop

Raise awareness by purchasing ISG merchandise. Badges, Keyrings, and Pens are some of the items available

Become a member

To register and benefit from our regular Newsletters, E Bulletins, Events and relevant literature please click here.

Receive updates by email

Keep updated by supplying us with your email address. Please click here.

Follow us on Facebook

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Current activities

  • Female participants needed for X-linked ichthyosis research

    Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.


  • Tell us Your Story

    Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.


  • Birmingham based X-linked physical development study

    Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.


  • Support our fundraisers by sponsoring them online.

    Click here to find out who is fundraising for the ISG!


One of our conferencesOur Family Day in 2012 was held at Old Trafford, home to Manchester United FCProduct sample goody bags waiting to be distributed to our families at our Family Day 2013

Featured Articles

Vote for us logo

Vote for us to win!

The Ichthyosis Support Group (ISG) has reached the finals of the National Lottery Awards and we need your votes to help us to WIN! Please vote for the ISG NOW! The National Lottery Awards are an annual search to find UK’s favourite lottery funded projects, recognising the difference lottery – funded projects make to communities [...]


NLA A6 Logo 3D Mono

The National Lottery Awards

The National Lottery Awards are an annual search to find the UK’s favourite Lottery-funded projects. Lottery players raise £35 million each week for projects all across the UK and the Awards are a great way to highlight how that funding has changed the UK for the better. Now in their tenth year, the Awards recognise [...]


John Barrowman, ambassador for The National Lottery Awards 2012

Spread the word, help us get votes to WIN!

Family, friends, schools, workplaces and clubs Make sure you tell everyone! Get everyone to vote for us. Share information on Facebook, Twitter, and link to our website! Download leaflets and posters and Email Template  to distribute and display wherever you can think of! Newspapers Call your local newspaper, websites, TV and radio stations and ask them to champion [...]


Journalism

Contact your local media and help us WIN!

Newspapers Call your local newspaper, websites, TV and radio stations and ask them to champion the Ichthyosis Support Group and the Family Day 2012 held at Old Trafford, home of Manchester United – by encouraging their readers/listeners to vote for us is a great way to gain extra publicity. They’re always keen to hear from [...]


Send text

Support us with a text!

Help support our cause with a donation by text. It is very easy! Please support ISG by donating an affordable amount by simply texting your donation to 70070 and use unique code ICHT14 followed by a space then £10 to make a £10 donation. For more information before you text please click on the image. [...]


DCE

Dermatology Council for England survey of changing dermatology services

We are seeking your feedback on current dermatology services. The Dermatology Council for England (DCE) has launched two surveys aimed at assessing the impact of the Government’s health reforms on dermatology services. There are two versions of the survey, one for patients and another for health professionals. Pending the number of responses, the DCE aims [...]


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