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Donate here

Please support ISG by donating an affordable amount. You may like to make a one-off donation or regular monthly payments.

ISG Online Shop

Raise awareness by purchasing ISG merchandise. Badges, Keyrings, and Pens are some of the items available

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To register and benefit from our regular Newsletters, E Bulletins, Events and relevant literature please click here.

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Keep updated by supplying us with your email address. Please click here.

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Current activities

Tell us Your Story

Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.

Birmingham based X-linked physical development study

Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.

Support our fundraisers by sponsoring them online.

Click here to find out who is fundrasing for the ISG!

If you would like to receive information from the Ichthyosis Support Group via email only, and do not wish to register any further details please complete the form below. If you would like to become a member of the Ichthyosis Support Group please complete the 'Become a member' contact form.

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Ichthyosis Support Group