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Walk for Skin in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.
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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.
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Group Profile
The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics.
The Executive committee that looks after the day to day running of the Support Group is comprised of ichthyosis sufferers and relatives of sufferers, all of whom give their time voluntarily.
Total number of members is currently over 400 (Sep 2005)
Our Aims
- To preserve and protect the health of and to relieve persons affected by ichthyosis and any associated condition.
- To advance the education of the medical profession and the general public on the subject of ichthyosis and its implications for the family.
- To promote research into the management of ichthyosis and to publish the useful results thereof, and to support organisations promoting research into ichthyosis.