Donate here

Please support ISG by donating an affordable amount. You may like to make a one-off donation or regular monthly payments.

ISG Online Shop

Raise awareness by purchasing ISG merchandise. Badges, Keyrings, and Pens are some of the items available

Become a member

To register and benefit from our regular Newsletters, E Bulletins, Events and relevant literature please click here.

Receive updates by email

Keep updated by supplying us with your email address. Please click here.

Follow us on Facebook

Follow us on Facebook. This link takes you to the official Ichthyosis Support Group facebook page

Current activities

• Female participants needed for X-linked ichthyosis research

  Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.

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• Tell us Your Story

  Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.

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• Birmingham based X-linked physical development study

  Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.

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• Support our fundraisers by sponsoring them online.

  Click here to find out who is fundraising for the ISG!

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