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Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.
Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.
Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.
Click here to find out who is fundraising for the ISG!
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