View and download past E Bulletins.
Did you know we have Awareness Cards that you might like to carry? Are there days when you don’t have time, or sometimes patience to respond to the questions, stares or curiosity of others about ichthyosis? Why not keep some of our cards in your pocket to give to those inquisitive members of the public to educate them and raise awareness!
You can order 20 cards for free (+p&p) from our online shop by clicking here.
Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.
Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.
Click here to find out who is fundraising for the ISG!
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