Articles for the ‘Current research projects’ category


Exploring Experiences of Visible Difference, Intimacy and Intimate Relationships

Researchers at the Centre for Appearance Research at the University of the West of England are conducting a new research study looking to examine the experiences of intimacy amongst people who have an altered appearance or an appearance altering condition. They are looking for participants who are willing to speak to them about their experiences […]


New research study: Genotype-Phenotype Correlation in Autosomal Recessive Congenital Ichthyosis

The term autosomal recessive congenital ichthyosis (ARCI) currently refers to a rare inherited group of ichthyosis that includes lamellar ichthyosis (LI), congenital ichthyosiform erytheroderma (CIE), harlequin ichthyosis (HI), bathing suit ichthyosis (BSI) and self-healing collodion baby. Affected individuals are often born with a similar collodion membrane or red scaly skin. Many ISG members have recently […]

YP Face IT Online advert Final

Online Support For Young People With A Visible Difference

YP Face IT is an easily accessible seven week web-based support for young people aged between 12 and 17 years old living with a visible difference.  Would you like to test it out and provide feedback? Do you have a condition, birthmark, scarring or illness that affects your appearance (the way you look)? Does it […]

Test Tubes of Colored Liquid

Research – Participants Needed

Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Work undertaken at Cardiff University has recently suggested that women who have reduced levels of the molecule steroid sulphatase may be at increased risk of developing postnatal mental health problems. In order to see whether this […]


Emotional and Psychological effects of living with a skin condition.

Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones?  Scott Thomas, a medical student from Kirksville College of Osteopathic Medicine – A.T. Still University, does and wants to find out how many patients consider their skin condition affects them psychologically and […]


Research Study – request for participants

Please note this study has ended due to lack of participants A research team based at CardiffUniversity are interested in examining the function of the protein steroid sulfatase in brain development and behaviour; alterations in this protein have been associated with changes in some brain functions. As part of this study, they are hoping to […]