Articles for the ‘How can you help?’ category

Raise your hand

“Raise Your Hand” for Rare Disease

Do something really special today by supporting a campaign to raise awareness of rare diseases. It takes less than two minutes to sign up at and you can be one of 2000 people who will have their name featured on a sculpture showing support for people with rare diseases for next February’s Rare Disease […]


Make a donation

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions. The ISG is run almost entirely by volunteers and receives no Government funding but relies totally on the generosity of individuals, companies and […]


Support us with a text!

Help support our cause with a donation by text. It is very easy! Please support ISG by donating an affordable amount by simply texting your donation to 70070 and use unique code ICHT14 followed by a space then £10 to make a £10 donation. For more information before you text please click on the image. […]

How can you help? Volunteering!

Would you like to join the committee or maybe become part of our Support Team? Maybe you are a parent, sufferer, or have experience of working in a specific field that you would like to use in the 3rd sector, such as fundraising, media and communications, book keeping, publicity, marketing and many other areas – […]

How can you help? Campaigning and raising awareness!

Many members feel they would like to do something to help the ISG but do not have the time to commit to becoming a trustee. Why not help raise awareness by ensuring information about ichthyosis is in your loocal surgery and/or dermatology department? There may be local events that you can participate in to help […]


A Beginner's Guide to Fundraising by an ISG member

A Beginner’s Guide to Fundraising: if I can do it, anyone can! I liked the idea of fundraising. My daughter Nina has BIE, and I had thought about raising money for the ISG but there were always a million and one reasons not to bother. Like many, I felt I was too busy, had too […]

Fundraising Guide

Would you like to fundraise but do not know where to start? Download or view our fundraising guide for some great ideas. Fundraising guide on line Fundraising guide printable format

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