Articles for the ‘ISG’ category

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Ichthyosis Awareness Week – 24th-30th September 2011

Join in with Ichthyosis Awareness Week from Saturday 24th to Friday 30th September 2011. The focus of the awareness week will be the ‘Pot of Gold’ challenge! Get an old tub or dispenser of cream, wash it out, and decorate it! Maybe it could become a gold pot full of coins? Decorate your pots however […]


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ISG National Conference 2011

The venue for this year’s conference was the Holiday Inn Kensington Forum hotel in London. The conference was a one and a half day event, with a social occasion on the Saturday night after the  first day’s conference, followed by a morning of further activities. Being a conference venue within a hotel, onsite accommodation was […]


Funday Thorpe Park 2010

Funday 2010 – Thorpe Park

In September 2010 families gathered together at Thorpe Park for the ISG Funday. Are you a parent with an infant with ichthyosis and have loads of why, how and what questions? Are you an adult with ichthyosis and still have loads of questions about the condition? How many other people do you actually know with […]


Asian Family Day

Birmingham Children’s Hospital was host to the 2nd ISG Asian Family Day

Professor Celia Moss, accompanied by her specialist nursing colleagues Sheila Richards and Dawn James, together with ISG Trustees, welcomed some of our Asian members for an informal get-together. Dermatology Nurse Specialist, Jean Robinson, travelled from London with a family. She helped the play specialist in an adjoining room, which gave the adults an excellent opportunity […]


ISG members at Croke Park

Irish Family Conference

Trustees and members of the ISG travelled to Dublin, Ireland for the first Irish Family Conference. 12 families gathered at the Croke Park Hotel in Dublin. This is adjacent to the world famous Croke Park Stadium, HQ of the Gaelic Athletic Association, Ireland’s biggest sporting organisation, and a well known International Rugby venue. The day […]


National Conference 2009

ISG Conference 2009

See Conference Special Newsletter for full details of the day. Conference Special Newsletter The ISG’s bi-annual conferences are a fantastic opportunity to meet and share experiences with other members and speak one to one with medical experts with an interest and knowledge of ichthyosis. The next conference will take place in 2013.


Alton Towers Resort Logo (www)

Funday 2008 – Alton Towers

There’s something about a trip to a theme park in England in September – queues and rain! Well, the Ichthyosis Support Group wasn’t going to be put off. 200 of us braved the elements and drove through the grey early morning drizzle to be greeted by the smiles of Claire and Mandy at the gates […]


ISG National Day 2007

ISG National Day and 10th Anniversary Celebrations 2007

The day of the ISG 10th anniversary conference had finally arrived. After months of hard work and preparation it was time to put all the plans into practice. The stage was set, and from as early as 6am members started to arrive. We were all soon mingling and enjoying the friendly atmosphere provided by the […]


@Bristol logo

Funday 2006 – @Bristol

On the 18th March 2006, families from all over the UK gathered together at the @Bristol complex, a science and wildlife centre in Bristol. We are very grateful to Asda for their support and for providing a cheque for £2000 for the Ichthyosis Support Group, Funday 2006. Our Chairman, Ray Rowley and his family were […]


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