ISG E Bulletins

Ichthyosis Support Group is with Liz Dale.

1 day ago

Having fun at the first ISG residential camp for children this year! ... See MoreSee Less

2 days ago

Little update, caiden is now 8 weeks old, applying his creams 2-3 daily his skin has been fantastic for last week with just shedding to his head, ave found his hands and feet quite tight and wrinkley so been applying coconut oil and found that better for hands and feet would it be ok to use on his body aswell? Also discovered he has an allergy to cows milk protein so on special milk, and he's still very anemic and docs struggling to find out why and hg levels aren't rising very much even with iron daily they think its link to his CIE, and he has a heart mumor due to anemia which is being watched closely, also was rushed to hospital a few days ago with breathing problems and had chest xray which found thickning of his airways so they think he has a viral infection but me personally believe he may has asthma aswell. And also have his first hearing test on 6th September which am looking forward to x ... See MoreSee Less

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Ichthyosis Support Group

2 days ago

Don't miss out on meeting your "ichthyfamily" at our Family Conference in Liverpool on Saturday 14th September. Come and meet Dermatology Consultants, Dermatology Nurses, an ENT Nurse Specialist, Researchers and many adults and children with ichthyosis. Register today at www.ichthyosis.org.uk/family-conference-2019/
If you haven't received the password to access the full information via email or in the newsletter please email us at isg@Ichthyosis.org.uk ... See MoreSee Less

Family Conference 2019 - Liverpool

eventbrite.co.uk

Eventbrite - Ichthyosis Support Group presents Family Conference 2019 - Liverpool - Saturday, 14 September 2019 in Liverpool, England. Find event and registration information.

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Ichthyosis Support Group shared a post.

2 days ago

Can you share similar experiences and advice about Lamellar ichthyosis?Our son has LI, does anyone else with LI experience thickening of nails and nails growing crooked? If so, how do you treat them? Thanks. ... See MoreSee Less

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2 days ago

Our son has LI, does anyone else with LI experience thickening of nails and nails growing crooked? If so, how do you treat them? Thanks. ... See MoreSee Less

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