Articles for the ‘Members’ category

Charity 3 hour Zumbathon

For Zumba lovers, those that are looking to get fit this summer and those that just love to move their hips to good music, this one is for you!!! Set yourself this challenge and come and join us, either as a sponsored zumbathon or £10 paid entry. Of course, we would strongly encourage you to complete it [...]

Isle of Wight Beach Soccer event – Sunday 3rd July 2011

Come and join us on the beach! For the 3rd year running the Isle of Wight Beach Soccer event is hosting the Ichthyosis Charity Cup on Appley beach, Ryde on the Isle of Wight. The next event is taking place on Sunday 3rd July 2011. Join families for a BBQ, music, raffle and to support [...]

SkinDeep Launch Party! – Sunday 29th May 2011

ISG member, Laura Levy, organises various events with the project name SkinDeep.  Laura’s son Mekhi was born in 2010 with ichthyosis. Laura soon began campaigning to raise awareness and funds to help support those affected by the condition and to aid research into this rare condition. The objective of the SkinDeep Fundraising Project is to raise money [...]

Bank Holiday Charity Party Sunday 1st May 2011 – Taking you way back!

ISG member, Laura Levy, has organised an event to mark the start of summer whilst fundraising for the Ichthyosis Support Group.  Laura’s son Mekhi was born last year with ichthyosis and soon after Laura began campaigning to raise awareness and funds to help support those affected by the condition and to aid research into this rare condition. Bank [...]

A Beginner's Guide to Fundraising by an ISG member

A Beginner’s Guide to Fundraising: if I can do it, anyone can! I liked the idea of fundraising. My daughter Nina has BIE, and I had thought about raising money for the ISG but there were always a million and one reasons not to bother. Like many, I felt I was too busy, had too [...]

Liverpool players past and present help raise funds for ichthyosis

Robbie Fowler, ex Liverpool FC player is Godfather to Thomas Calvey who has Bullous ichthyosis.  Robbie decided some time ago to organise an event to raise awareness of ichthyosis and funds for the ISG. Formby Hall Golf Club, near Liverpool hosted Robbie’s Charity Golf Day for ichthyosis which involved 21 teams consisting of past and [...]

Lee Westwood's tournament bag auctioned for ISG

Lee Westwood donated his tournament bag in 2009 to be auctioned on eBays ‘Big Bid’ with the proceeds benefitting the ISG. Many thanks to the buyer who has generously bid £500. The bag was bought as a present for the purchaser’s grandson. We extened our thanks to Lee for his kind donation. Click here for [...]

Phoenix Nights Fundraiser

On Saturday 28th January at St. Gregory’s Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay’s popular comedy TV series ‘Phoenix Nights’ and the venue for the event was the actual club where the series was filmed. The idea for the event first came about when some [...]