Articles for the ‘More than just a skin condition’ category
Quality Standards for Dermatology
A document named Quality Standards for Dermatology has been published that has been worked on by a team of representatives from all the stakeholders in dermatology. These standards form the foundations of a good dermatology service for everyone with a skin condition. What will now be worked on are specific standards about different treatments and [...]
iface
iFace is a website set up by a charity called Changing Faces for young people aged 11-21 to discuss living with a visible difference, give and get advice and share personal stories. Take a look around and see how other young people are dealing with their experiences.
Satisfaction in Life for Children – Quality of Life Measurement
Paediatric doctors at University College London have developed a quality of life measure for children aged 4 to 10 years old with a chronic illness such as ichthyosis. Many conditions, such as ichthyosis, have no specific information or statistics available regarding quality of life. It has been shown through much research, that given the same [...]
Dermatology Life Quality Index (DLQI)
Members tell us that often the perception of having ichthyosis, or indeed other skin conditions, by the public and even medical professionals, is that it is “just a bit of dry skin”. In reality to many patients it certainly is not “just a bit of dry skin”. The following information is taken from Cardiff University [...]
Living with a visible difference – talking to your child
Talking openly and honestly about appearance from an early age will help your child to feel accepted and valued and build his/her self-esteem. If you can find the words to talk about your child’s ichthyosis, you can: Prepare him/her for handling people’s inevitable natural curiosity about their appearance with confidence allay unnecessary fears that come [...]