Articles for the ‘My Story’ category
Nusrit
My name is Nusrit Shaheen and I am 27 years old (2011). I have a skin condition called Harlequin ichthyosis and I live in Coventry with my Brothers and Mum. I had four other siblings who were also born with the same condition but who died as small children. I am possibly the oldest living [...]
Emma
2006 Hi, I’m Emma and I am 13. I’ve got lamellar ichthyosis and so has my sister Stacey. I’ve got two other sisters and a brother, they have nothing wrong with them! Me and Stacey are the only ones in our family that got lamellar ichthyosis! When I was born I had this light green [...]
Ted
Hey I’m Ted. I’m 17 and I’ve just finished my first year of sixth form. I guess ichthyosis differs, I’ve heard about and met people with much more severe cases than myself. Some doctors have called my condition Lamellar and some called it CIE. I’ve got dry skin all over my body and have to [...]
Bill
I was 80 years of age in February 2009. I have had dry skin all my life, when I was a child my elbows, hands, fingers, knees, I lower legs and feet gave me trouble. The Winter was the worst time of the year, when my cracked, skin would bleed. My Mother used to bath [...]