Articles for the ‘Surveys – you can make a difference’ category

DCE

Dermatology Council for England survey of changing dermatology services

We are seeking your feedback on current dermatology services. The Dermatology Council for England (DCE) has launched two surveys aimed at assessing the impact of the Government’s health reforms on dermatology services. There are two versions of the survey, one for patients and another for health professionals. Pending the number of responses, the DCE aims […]


APPGS

Inquiry into the social and psychological effects of skin diseases – your input needed!

Thank you for all responses received, this survey is now closed! As part of the review of the 2003 ‘Enquiry Into The Impact Of Skin Diseases On People’s Lives’ a new questionnaire has been produced. Part of the review involves a new call for evidence to compare the responses to those received in 2003 with […]


Changing Faces new logo

Changing Faces – Look at Me Campaign – Download the Preliminary Report here!

View the Look at Me preliminary report 2012  here. The final campaign report will be published in 2013   Look at Me is the campaign led by Changing Faces, the UK wide charity supporting and representing people with conditions, scars and marks which affect their appearance.  The aim of the campaign is to ensure that people with […]


Contact_a_family_logo

Contact a Family Launches Counting the Costs 2012

Contact a Family have just launched their latest research Counting the Costs 2012 Following a survey they conducted earlier this year.  Findings show that families are going without essentials, such as food, heating and clothing, and getting into debt before the full impact of benefit cuts is felt. 58 per cent of families fear their financial […]


Genetic Alliance Logo

How do you access new therapies and healthcare services – participate in the survey

How do you access new therapies and healthcare services? As a patient, caregiver, or patient advocate of rare diseases, your views are very important to helping understand access to quality healthcare issues and challenges. In order to gather your views on these issues, we would like to invite you to participate in a survey. The […]


doctor

Emotional and Psychological effects of living with a skin condition.

Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones?  Scott Thomas, a medical student from Kirksville College of Osteopathic Medicine - A.T. Still University, does and wants to find out how many patients consider their skin condition affects them psychologically and […]


Changing Faces web

Changing Faces Survey – Psychological & Social Support

Changing Faces have designed three surveys in which they aim to find out about the current services that are available to provide psychological and social support for people who are living with a condition, injury or marking that affects their appearance. To do this they need your help! They want to ask adults age 16 and […]


MP900402625

Satisfaction in Life for Children – Quality of Life Measurement

Paediatric doctors at University College London have developed a quality of life measure  for children aged 4 to 10 years old with a chronic illness such as ichthyosis.  Many conditions, such as ichthyosis, have no specific information or statistics available regarding quality of life. It has been shown through much research, that given the same […]


Online Survey

Are you interested in a specialist service for ichthyosis?

The Ichthyosis Support Group (ISG) is working with the ISG Medical Advisory Board to apply for national funding from the NHS specifically for ichthyosis. We would like to know a little more about you and how you manage and care for your ichthyosis. We would very much appreciate it if you would complete the short […]


contact a family logo

Contact a Family Survey – This Survey has now ended

Contact a Family is calling on parents and other family members caring for a disabled child to take part in their important research about the financial situation for families with disabled children in 2012. Counting the Costs 2012 is a repeat of a survey and report they carried out in 2008 and 2010. Your collective […]


Survey

The BIG British Skin Foundation Survey – This survey has now ended

The Big British Skin Foundation Survey! This survey is now closed. Take part in BSF’s short survey and tell them how skin disease affects you! The survey should take no more than 2 minutes to complete, and is a great opportunity to get out there how skin disease affects people in the UK. Please click […]


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