Articles for the ‘Surveys – you can make a difference’ category
Contact a Family Survey
Contact a Family is calling on parents and other family members caring for a disabled child to take part in their important research about the financial situation for families with disabled children in 2012. Counting the Costs 2012 is a repeat of a survey and report they carried out in 2008 and 2010. Your collective [...]
Changing Faces Survey – Psychological & Social Support
Changing Faces have designed three surveys in which they aim to find out about the current services that are available to provide psychological and social support for people who are living with a condition, injury or marking that affects their appearance. To do this they need your help! They want to ask adults age 16 and [...]
Satisfaction in Life for Children – Quality of Life Measurement
Paediatric doctors at University College London have developed a quality of life measure for children aged 4 to 10 years old with a chronic illness such as ichthyosis. Many conditions, such as ichthyosis, have no specific information or statistics available regarding quality of life. It has been shown through much research, that given the same [...]
Are you interested in a specialist service for ichthyosis?
The Ichthyosis Support Group (ISG) is working with the ISG Medical Advisory Board to apply for national funding from the NHS specifically for ichthyosis. We would like to know a little more about you and how you manage and care for your ichthyosis. We would very much appreciate it if you would complete the short [...]
The BIG British Skin Foundation Survey
The Big British Skin Foundation Survey! This survey is now closed. Take part in BSF’s short survey and tell them how skin disease affects you! The survey should take no more than 2 minutes to complete, and is a great opportunity to get out there how skin disease affects people in the UK. Please click [...]