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The ISG is excited to relaunch the MyISG ‘Private’ Members Network in Ichthyosis Awareness Month and our 20th Anniversary Year, 2017! After much feedback and development […]
Make a difference with us The Ichthyosis Support Group (ISG) is delighted to introduce you to its Corporate Social Responsibility (CSR) Strategy for the business […]
Newsletter Spring 2016 Newsletter Winter 2016
Registration is now open for our first Scottish Family Day in Glasgow on Saturday 12th November.Registration is just £10 per family (2 adults and children) […]
Hello my name is Theo and I am 15cm tall. I’m strong, a little bit fierce, oh and I have some scales too! Many people […]
We are excited to announce this year’s ISG annual event will take place at Conference Aston in Birmingham, England. http://www.conferenceaston.co.uk The event will start […]
Raise 4% instore for us when you shop for Christmas (or do your weekly shop) at Sainsburys with their Everyday Shopping Card
Mandy Aldwin, Founder Trustee of the ISG and patient representative BADGEM Clinical and Diagnostic Signposting subgroup Introduction: The Ichthyosis Support Group (ISG) conducted an anonymous […]
Researchers at the Centre for Appearance Research at the University of the West of England are conducting a new research study looking to examine the […]
Robbie Fowler, ex Liverpool FC player is Godfather to Thomas Calvey who has Bullous ichthyosis. Robbie decided some time ago to organise an event to […]
Registration is now open for our annual event in Cardiff and if you are an ISG member you will have received details about how to register in the post and/or via email. However if you are not a member, or you have not received this information please contact us …
Journalist from the US Today Show crosses the pond to meet Annabelle. Watch online.
Laura Levy whose Son Mekhi was born a collodion baby is fundraising for ichthyosis and the Ichthyosis Support Group. Her and Mekhi were recently featured […]
ISG member Nusrit Shaheen appeared on ITV’s This Monring programme on Thursday 25th August along with ISG’s Medical Advisory Board Chairman Dr David Paige. You […]
Ada Mulhern talks to the presenters of Ireland’s ‘This Morning Show’ about her son Sama who has Bullous ichthyosis. To watch the interview click here.
Would you like to tell your story in the media? – Why not consider being a Case Study?* We receive various requests for people willing […]
When Ellamay was born she was very red. I remember my Mum asking the midwife why she was so red but her response was it […]
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The ISG awards funding of £5000 annually to ichthyosis related research. Updates for these projects can be found in individual posts about each of the […]
Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their […]
Registration is now open for our annual event in Cardiff and if you are an ISG member you will have received details about how to […]
The ISG Unity Lottery, sign up and start playing today! Win up to £25,000 with the ISG’s weekly lottery. Join our lottery and help us continue […]