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Meet our Celebrity Supporters
Walk for Skin in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.
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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.
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Robbie Fowler
"My godson Thomas has Bullous Ichthyosis (BIE). His skin is extremely dry and it can be torn off from the slightest knock. He has to be creamed many times per day.
The Ichthyosis Support Group helps kids like Thomas and his family by sending regular newsletters updating him on the latest news and research about Ichthyosis but more importantly, introducing him to other sufferers and their families at their National Days and Fundays. It is very important for Thomas to know he is not alone with this condition"
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Andi Peters
“When I was filming City Hospital, I met a young ichthyosis sufferer. Like most people I had never heard of this terrible skin condition. The Ichthyosis Support Group (ISG) is a charity run by sufferers for sufferers and does tremendous work, raising awareness and funds for research. One of the most important services they provide is regular opportunities for sufferers to meet others with the same conditions, relieving their sense of isolation. For some, when they come to an ISG day it is the first time in their lives they have felt that they truly belong. Now that I know how many different types of ichthyosis there are, and how devastating and painful some of the rare forms can be, I have decided to support the ISG. Please join me in supporting them, so that effective treatments and cures can soon be found for these debilitating conditions”
Janice Connolly
(Barbara Nice)
"A small organisation doing a big job in helping families come together for much needed support and information - I have been really impressed by the commitment and love that has brought people together with the common aim of making things better now and in the future "
Janice Connolly is a British actor, comedian and artistic director best known for her character Barbara Nice - a caricature of a middle aged housewife. She was performing as Barbara Nice when spotted by Peter Kay at the finals of The Manchester Evening News New Act of The Year in 1998 and went on to appear in several of his television shows. She played Holy Mary in both Phoenix Nights and Max and Paddy's Road to Nowhere. Her other television work includes appearing in Coronation Street as Dolly Gartside.
Mrs Barbara Nice will be performing throughout August at the Edinburgh Festival . The show is called "Hiya and Higher " and will be at 6.30 at The Stand Comedy Club, George Street.