If you would like to become a member, or would just like more information about the ISG or ichthyosis in general, please use the buttons below to get in touch
Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.
Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.
Click here to find out who is fundraising for the ISG!
Events taking place soon
National conferences, Fundays etc
Events organised by our members
Events and meetings held by organisations such as the British Skin Foundation and other relevanrt associations.
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Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904