This year’s Family Conference is taking place in the wonderful city of Liverpool on Saturday 14th September. We are delighted to be returning to the North West of England to meet new members and welcome back friends who have been to our conferences previously.

Adults with ichthyosis, carers of those affected by ichthyosis including parents, grandparents and close family and friends supporting somone living with ichthyosis are invited to meet each other and gain information during various group discussions. Medical professionals and researchers will participate alongside everyone to share their knowledge and expertise with you, and will encourage you to do the same as well as presenting to you in a more formal setting with relevant informaton relating to living with and caring for ichthyosis.

We have organised an exciting trip to Jungle Parc for the kids aged 6 up to 15 years (accompanied by DRB checked volunteers allowing parents to enjoy the conference) to take part in either the Explorer course or the Adventurer course (note age and height restrictions). Children aged 5 and under will be kept entertained and well looked after by Tinies who provide an onsite professional mobile crèche. We have used them for a few years and the children (and parents) have always been very happy.

A number of pharmaceutical companies will attend to share their products with you, and we will also provide goody bags of products from companies unable to be there themselves.

Please register as an “ISG Member Family” which can be any combination of up to 2 adults, plus their children for £25.00. If there are more than 2 adults attending, there is an additional registration per adult of £10.00. Also register any adult wishing to accompany a child on the trip to Jungle Parc by selecting this option. There are no additional charges for children under the age of 18. Lunch, unlimited refreshments and all activities are included for adults and children. Please register every individual who will be attending the event. For health and safety, capacity and catering reasons we do need to know numbers in advance. You must register to attend.

If you are a speaker or medical professional please register as such by selecting the correct ticket type.

Parking: Unlimited onsite FREE parking.

Transport: Nearest railway station is about a 5-10 minute walk away.


Following registration if you or anyone registered is no longer able to attend closer to the event date, please advise us as soon as possible. The ISG will still incur the charges for your attendance unless you tell us otherwise up to 1 week prior to the event. On average it costs the ISG about £250 for a family of 4 to attend the conference which is all paid in advance.


Please use the password sent via email and contained within the newsletter due to be posted out within the next few days. If you do not have the password please contact us. The reason we keep the full details private is to protect ISG member privacy and to prevent people just turning up on the day.

Do call us on 0845 602 9202 or email us at if you have any questions.

We look forward to seeing you in September!