Latest news

Meet our Celebrity Supporters

 

 

 

 Lee Westwood tournament bag auctioned for the ISG

FULL STORY

Ex-Liverpool striker Robbie Fowler held a charity golf day on the 18th May 2009 to raise funds for the ISG.

FULL STORY

In September 2008 we held a Funday at Alton Towers read about it here.

FULL STORY

Walk for Skin 2008 in Regents Park, read about it here.

FULL STORY

In March 2007 we celebrated our 10th Anniversary and 5th National Day!

FULL STORY

Fun Day in Bristol in 2006.

FULL STORY

Phoenix Nights Fundraiser Saturday 28th January 2006.

FULL STORY

 

Did you see the TV Documentary about two families with Harlequin Ichthyosis that was shown on Wednesday 19th March on Channel 5 at 9pm?

Extraordinary People: The girls with too much skin 

 

Date: 4th October 2005

Real Families: My Skin Could Kill Me aired a documentary about two families affected with the incurable and potentially fatal genetic skin condition known as Harlequin Ichthyosis. The condition causes them to grow too much skin at an accelerated rate.

If you are interested in making a donation to the registered charity, please see our donations page »

Meet the families who were featured in the documentary »

Unfortunately we don't have copies of the programme that we can sell.