Some of the different ways you can ‘get involved’ with the ISG!

How can you help? Volunteering!

Would you like to volunteer for the ISG? Perhaps become a Trustee or a Regional Contact for members in your area? Do you have a skill or connections to industry that could help or promote the ISG and ichthyosis?

Would you like to raise awareness of ichthyosis, or rare diseases as a whole? Campaign for better understanding and acknowledgement of skin disease!

ISG Ichthyosis DVD

Would you like to be involved in the making of an educational DVD about ichthyosis? Read more.


How to raise money for the ISG quickly, easily and in many ways very simply, and without having to organise an event or obtain sponsorship.

Thinking of organsiing an event, or would like to support an event? Find out more here.


Complete a survey that will help inform and explain how having a skin condition affects or impacts on your life.

Research participants needed

If you or a member of your family has a form of ichthyosis you may be able to help with a research study or project.

Youth Forum

Would you like to be a voice for children and adolescents living with ichthyosis? Join our Youth Forum!

Shop for ISG merchandise

Help raise awareness by purchasing ISG branded merchandise.