May is Ichthyosis Awareness Month!

This year the Ichthyosis Support Group (ISG), European Network for Ichthyosis (eni) has joined the Foundation for Ichthyosis and Related Skin Types (FIRST) from the US in the efforts to promote Ichthyosis Awareness Month (IAM).

May is Ichthyosis Awareness Month (IAM). During May we encourage families and friends around the world to join together, use their voices, and raise awareness about the challenges and hopes of the ichthyosis community.

Be a part of the worldwide effort.

We’re encouraging ichthyosis organisations and advocates from all over the world to come together to let everyone know that people from many countries are affected by ichthyosis. Social media is the quickest and easiest way to be a part of this worldwide IAM effort.

How can you get involved?

Simply post a photo or video of you, your friend, relative or child with ichthyosis, using hashtag #IchthyosisAwareness. Download and print the IAM Worldwide logo, and hold your country’s flag in a selfie. Why not shoot a short video saying “My name is ….., I/my child has/have ichthyosis and IAM from the UK”.

Let the world know where you are from and that you have or support someone with ichthyosis.

Visit and share to the IAM Worldwide Facebook page.

Use our IAM social media graphics all month long!

Are You on Facebook? Twitter? Instagram?
IAM is Going Global! Use #IchthyosisAwareness in your posts.

Sign up for the Walk for Ichthyosis which is taking place on Saturday 22nd July. We are organising a 25 mile sponsored walk from Reading to Newbury in this our 20th Anniversary year! You can join us for all or a part of the walk on 22nd July 2017.  The team of walkers is growing all the time and if you’d like to sponsor us please visit or to participate please call us on 0845 602 9202

Educate by distributing leaflets, chat with friends and work colleagues about ichthyosis and how it affects you or someone you know. Send us your story of living with ichthyosis and we will publish it online, dont forget to send us a photo!

Pledge to help us continue to support families and individuals living with ichthyosis by signing up to give a monthly donation.

IAM Meet Up: Organise a local member meet up during the month of May, take photos and share online. Encourage members near you to get together! Remember to use the hashtag #ichthyosisawareness