ISG members in the media

Please support ISG by donating an affordable amount. You may like to make a one-off donation or regular monthly payments.

Raise awareness by purchasing ISG merchandise. Badges, Keyrings, and Pens are some of the items available

To register and benefit from our regular Newsletters, E Bulletins, Events and relevant literature please click here.

Keep updated by supplying us with your email address. Please click here.

Emotions survey – how do you feel?

Participate in the anonymous British Skin Foundation survey about living with a skin condition. Click here to take part.

Tell us Your Story

Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.

Birmingham based X-linked physical development study

Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.

Support our fundraisers by sponsoring them online.

Click here to find out who is fundrasing for the ISG!

A couple of ISG members have been telling their story recently in the press, both in magazines and on tv.

Please visit our MEDIA section to read or see their stories that have been featured in the media.

For these and more stories about some of our members please visit our media area by clicking here.

Ichthyosis Support Group