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Meet our Celebrity Supporters
Lee Westwood tournament bag auctioned for the ISG
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Ex-Liverpool striker Robbie Fowler held a charity golf day on the 18th May 2009 to raise funds for the ISG.
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In September 2008 we held a Funday at Alton Towers read about it here.
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Walk for Skin 2008 in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Fun Day in Bristol in 2006.
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Phoenix Nights Fundraiser Saturday 28th January 2006.
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Changing Faces is a UK charity that supports and represents people who have disfigurements of the face or body from any cause.
iFace is a website set up by a charity called Changing Faces for young people aged 11-21 to discuss disfigurement, give and get advice and share personal stories.
Eurordis
Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
European Network on Ichthyosis
Action Medical Research, for children, for life - the leading UK-wide medical research charity dedicated to helping babies and children.
Harlequin Ichthyosis Trust
The purpose of this fund is to provide sums for research and education on Harlequin Ichthyosis.
http://www.bartsandthelondon.org.uk
Skin Care Campaign
The Skin Care Campaign (SCC) is an umbrella organisation representing the interests of all people with skin disorders in the UK
http://www.skincarecampaign.org
Foundation for Ichthyosis and Related Skin Types
US based support group for ichthyosis conditions
http://www.scalyskin.org
Ichthyosis Information
Another US based website with some sensible information.
http://www.ichthyosis.com
Contact a Family
Contact a Family is a UK-wide charity providing support, advice and information for families with disabled children.
http://www.cafamily.org.uk
The
European
Academy of Dermatology and Venereology
Founded in 1987, EADV is a non-profit association whose mission is to provide European physicians with Continuing Medical Education (CME) opportunities, specialised information services and professional support networks.
Chinas largest website about Ichthyosis Vulgaris (not in English)