My name is Mai, I’m a 20-year-old student with many dreams and ambitions. As other sufferers of ichthyosis, I had been going through both physically and mentally difficulties. However, it’s a must to learn how to face our problems. Then I have gradually accustomed to solve them on my own step by step. Have you ever felt tired of exerting in such a long time? Sometimes I want to give up all of those things which I have carried on. The only motivation that makes me always move on is that because somehow there will be a result if I will to do something. Seriously, when I take a look on my future after graduation, I really feel nervous. There are a few troubles that seem to be nothing with people but these turn out annoying when it keeps persisting you.
I’m not sure what kind of ichthyosis that I have to suffer, but it definitely drives my life harder. The hotter the weather is, the worse my skin gets. Unfortunately, it’s hardly cold here in my country. I have never gone to a party just because I could not wear a beautiful dress nor makeup neither. Although photography is one of my hobbies, I am seldom taken a photo. Even though I always dream about travelling around the world, I do not go out frequently. There is no chance for me to join any social activity though deep inside my heart, I truly want to volunteer for an organisation or to do something to help people, especially children. Because of my look, it’s not easy to find a part-time job. I was a tutor but it got bored me quickly, the reason was I prefer communicating with everybody. I try to adapt but deep down I do not want to live this way. After rejecting the Medical School’s offer, I got in Hanoi University of Pharmacy with the hope finding a cure for symptoms of ichthyosis. It’s no deny that I was too pessimistic. Believe me, you would had looked life in the same way if you had had siblings who are all beautiful and successful. In addition, my brother keeps telling me that he would provide for me because he thought that I had no future at all. That’s the reason why I’m trying my best to prove that I have ability to take care of myself. There is no doubt that it is not easy, definitely not.
In order to help myself be better able to deal with challenges, I don’t forget appreciating the smallest joys in life: I have taught myself to cook, I have been learning photography. I am saving money to travel and going to afford a new professional camera then I can perform my creating through photos. I’m receive into a pharmacognostical laboratory in university. Hopefully, I will find out a connection between cosmetics and plants. Whenever a new idea appears, I note it immediately so perhaps it may be useful someday. I have a dream. I want to go abroad and continue researching on my field.
I think, more or less, we all here have to undergo similar situations then it’s no need to tell anymore about it. We probably understand, don’t we? No matter what happen with me, I always ready to face it. Everyone deserves a happy ending so I allow myself a few minutes to imagine how my ideas become true any time I feel exhausted. I realise that never be content with fate, accept it