What our members are saying.


My Story

Send us your story! Tell us all about your experiences of living with ichthyosis.  Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to!  Use the contact form to let us know.


‘Top Tips’ – living with ichthyosis

Advice, suggestions and tips from people living with ichthyosis

Living with ichthyosis can be difficult for not only the person with the condition but also family members or those closest to you.

Some of our members, and their families, have come up with some great tips to make life easier and help with the day to day living with ichthyosis.