There will be a clinical trial starting in the UK, hopefully in 2019, for Lamellar ichthyosis, initially for adults over 18 and later for children age 12 to 18 as well.

The new treatment is a topical retinoid which will be applied twice a week.  The trial will compare the retinoid with a placebo (dummy cream).  All participants can opt to receive the topical retinoid in an extension to the study, so anybody with Lamellar ichthyosis who participates will eventually receive the active cream.

The paperwork for the trial is still going through the regulatory procedures – ethical approval etc and there will be more information available after this has been completed.

 

Professor Edel O’Toole

Chairman, Medical Advisory Board, Ichthyosis Support Group

February 2019