It may be perhaps the most anquishing experience you will ever know.  Your baby has a skin disorder called ichthyosis.  ISG has information below that will answer your many questions and help you through the challenges ahead, as you guide your child to their special place in the world.

Information for parents

Collodion Baby leaflet

Overview of ichthyosis

The Inheritance of Ichthyosis

Children’s questions

Guide for Teachers and Carers

Dealing with doctors – what you can expect from your doctor and what you can ask for if you don’t think you are getting the response you need.

Why people with ichthyosis should see a consultant dermatologist and not just be told it’s unnecessary