Latest news
Meet our Celebrity Supporters
Lee Westwood tournament bag auctioned for the ISG
FULL STORY
Ex-Liverpool striker Robbie Fowler held a charity golf day on the 18th May 2009 to raise funds for the ISG.
FULL STORY
In September 2008 we held a Funday at Alton Towers read about it here.
FULL STORY
Walk for Skin 2008 in Regents Park, read about it here.
FULL STORY
In March 2007 we celebrated our 10th Anniversary and 5th National Day!
FULL STORY
Fun Day in Bristol in 2006.
FULL STORY
Phoenix Nights Fundraiser Saturday 28th January 2006.
FULL STORY
Study launched in Birmingham:
Hormones in X-linked Ichthyosis
- participants wanted!
The University of Birmingham and Birmingham Children’s Hospital have jointly set up a research study in boys and men with X-linked recessive ichthyosis (XLI) aged from 6 to 30 years.
People with XLI lack steroid sulfatase, a substance with a role in the skin and also in the production of certain hormones. The research team wants to learn more about this condition by studying steroid hormone levels in people with XLI, and checking if their physical development is altered.
The research is led by Professor Wiebke Arlt, Consultant Endocrinologist (hormone specialist), Dr Jeremy Kirk, Consultant Paediatric Endocrinologist and Prof Celia Moss, Consultant Dermatologist and member of the ISG Medical Advisory Board.
The research includes one visit to Birmingham Children’s Hospital, which takes about one hour. Dr Jan Idkowiak, the research doctor organising the study, will carry out a physical examination and take a blood sample. Before the visit participants will be asked to collect all their urine for one day (a special container is provided). The study has been approved by the Research Ethics Committee and is funded by Birmingham Children’s Hospital Research Charity.
If you are interested in taking part in this study and would like to learn more, please contact Dr Jan Idkowiak who will be happy to answer any questions and provide you with information leaflets for parents and patients.
Many thanks for your help!
On behalf of the study team,
Prof Celia Moss DM, FRCP, MRCPCH
Consultant Dermatologist
Honorary Professor of Paediatric Dermatology