Other Relevant Organisations
It is a joint initiative of Genetic Alliance UK (see below) and others in response to unmet health care needs of hundreds and thousands of families who currently struggle to get access to integrated care and support from the NHS.
The UK children’s charity that aims to change the world for children with genetic disorders.
Genetic Alliance UK is the national alliance of patient organisations with a membership of over 130 charities supporting all those affected by genetic disorders.
The Specialised Healthcare Alliance (SHCA) is a broad coalition of patient groups supported by a smaller number of corporate members. SHCA was established in 2003 to campaign on behalf of people with rare diseases and other complex conditions which require specialised medical care.
Action Medical Research, for children, for life – the leading UK-wide medical research charity dedicated to helping babies and children.
An online web directory listing complementary therapists (counsellors, hypnotherapists, acupuncturists etc) all over the UK. Each therapist has a profile stating what areas they specialise in, a bit about their background, and their qualifications. The site also has a wealth of information about various types of distress that complementary therapies can help, as well as a blog about the latest therapy news.
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