Do you live in England? Have you experienced any problems with your emollients/ointments/creams/lotions or garments not being prescribed any longer by your GP?
We need evidence that patients are being affected by recent NHS England guidelines being misinterpreted, resulting in patients being denied their usual emollients. If you have experienced issues with products you regularly use being reduced, restricted, substituted or stopped altogether please tell us via our survey.
MP’s are aware of what should be happening and believe patients are not ebing affected but we have heard differently. Please complete our short survey.
Please also share in the ichthyosis community!
N.B. Please do not use this survey to inform us that you can no longer obtain Calmurid. Unfortunately Galderma, the company who manufacture the product have globally discontinued it. See what our ichthyosis community are using as alternatives on our Facebook page.