My godson Thomas has Bullous Ichthyosis (BIE).
His skin is extremely dry and it can be torn off from the slightest knock. He has to be creamed many times per day.
The Ichthyosis Support Group helps kids like Thomas and his family by sending regular newsletters updating him on the latest news and research about Ichthyosis but more importantly, introducing him to other sufferers and their families at their National Days and Fundays. It is very important for Thomas to know he is not alone with this condition.