school-pack-coverWe are very proud to launch our School Pack – Coping with ichthyosis at Pre-School and Primary School. This document is the first of its kind in the UK for ichthyosis.

Starting school or going to a new school is a very exciting, but maybe a worrying time for any parent and child especially where the child has ichthyosis. It’s a time when the child gains more  independence which represents an even greater challenge. This may be the first time your son or daughter has been responsible for managing their skin care routine themselves and most teachers are unlikely to have cared for a child with ichthyosis previously.

This guide is for pre-schools and primary schools and all the staff who work there. It provides information for pre-school staff, primary school teachers, teaching assistants and school nurses, with the purpose of helping to support the child, parent/carer and their families.

The aims of this guide are focused around the child, so pre-schools and primary schools can provide the support required for a child with ichthyosis, and are based around four main areas as follows:

  • Information : Information provision and advice on how to support a child with ichthyosis to have a fulfilling school life.
  • Empower : Enabling the child with ichthyosis to feel totally included and involved with every aspect of school life.
  • Understand : Helping other children (and adults in pre-/school setting) understand about ichthyosis and what it means to the child and those close to them.
  • Support : Support parents in ensuring the needs of their child are met at pre-school, school or
    playgroup.

For a preview click on the images below.

You can view and download the 28 page School Pack here.

Should you prefer a printed copy of the School Pack to be sent to you please email us and request it here.

If you would like to make a donation towards the cost of writing and designing of our School Pack you can do so here – thank you!

 

 

DragonHave you met Theo our mascot? Theo is the character running throughout the School Pack and if you would like your very own Theo you can buy him from our online shop.

 

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