Set up an online sponsorship form for your fundraising event using the button below.
You may want to check out if someone is participating in an event that you might like to sponsor by clicking on the button below.
Researchers are looking for mothers/daughters of individuals with X-linked ichthyosis who have suffered mental health problems after giving birth. Click here for more information.
Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you’d like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.
Participants (aged between 6-30 years) needed for research to investigate physical development in X-linked ichthyosis sufferers. Click here to find out more.
Click here to find out who is fundraising for the ISG!
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