Support Organisations

Ichthyosis Support Group on Facebook

Join us on Facebook

Ichthyosis in Ireland

Support for Ichthyosis in Ireland

European Network for Ichthyosis

The European Network for Ichthyosis (eni) is an international patients network run by national European patients associations.  eni is a common voice for ichthyosis patients and a partner for authorities on a European level.

Friends of Ichthyosis

Another UK based site for sufferers and for those affected by the rare skin disorder Ichthyosis. Information about the condition, links to external sites and an online community.

Foundation for Ichthyosis and Related Skin Types (FIRST)

US based support group for ichthyosis

Ichthyosis Information Forum based in the US

This site strives to improve the ichthyosis community’s resources, raise awareness and support, and provide an easy-access meeting place.

SHHIRT The Harlequin Ichthyosis Charity

The Samuel Hardgrave Harlequin Ichthyosis Research Trust (SHHIRT) is a UK registered charity dedicated  to researching Harlequin Ichthyosis, and helping those affected by it.

Contact a Family
Contact a Family is a UK-wide charity providing support, advice and information for families with disabled children.

iFace

iFace is a website set up by a charity called Changing Faces for young people aged 11-21 to discuss visible differences, disfigurement, give and get advice and share personal stories.

Changing Faces

Changing Faces is a UK charity that supports and represents people who have disfigurements of the face or body from any cause.

Eurordis

Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.

British Skin Foundation

The British Skin Foundation (BSF) is the only UK charity dedicated to skin disease research. Their aim is simple – to raise money for research projects that will hopefully result in cures or at the very least, a better understanding of the numerous skin conditions that affect millions of lives in the UK.

British Association of Dermatologists

The British Association of Dermatologists is the professional organisation for Consultant,  Trainee and Staff and Associate Specialist dermatologists in the UK and Eire.

Established in 1920, it is a registered charity with an incorporated body of trustees, the Executive Committee, who are all dermatologists elected by the membership. The Officers, supported by the professional staff carry out the day to day business from Willan House, the headquarters building in central London.

Counselling Directory

A site providing the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs.

Counsellor Directory

Find a Therapist - UK & Ireland Counsellor Directory

 

 

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