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Walk for Skin in Regents Park, read about it here.

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In March 2007 we celebrated our 10th Anniversary and 5th National Day!

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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.

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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.

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The milder ichthyoses can be well controlled using regular moisturisers, that is bath oils, soap substitutes and moisturising creams. They tend to improve in warm weather and on holiday and may gradually lessen in adult life.

The severe forms may make affected babies quite unwell and treatment in special care baby units will help them get over their problems. Moisturisers are again important as ongoing treatment and antibiotics may be needed from time to time. A group of drugs called retinoids may be tried as they lessen scaling in many forms of ichthyosis.

The complicated varieties of ichthyosis will need additional treatments according to their problems.