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Walk for Skin in Regents Park, read about it here.

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In March 2007 we celebrated our 10th Anniversary and 5th National Day!

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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.

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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.

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There are a number of rare genetic diseases which affect several systems of the body and also cause ichthyosis, these are referred to as ichthyosiform syndromes. The main forms of inherited ichthyosis are as follows:-

Ichthyosis vulgaris
The most common form and usually quite mild with fine scaling or roughness on the arms and legs. It is more common in people with atopic (allergic) eczema and improves in warm weather
X-linked recessive ichthyosis
Occurs in boys and men and causes brownish flat scales most obvious on the arms, legs and tummy. It varies in severity and some affected babies have a difficult delivery It is passed on through the female line.
Non-bullous ichthyosiform erythroderma and lamellar ichthyosis.
These are very rare, often severe with prominent scaling and redness of most of the skin. Affected babies are often born with a shiny waxy second skin (collodion membrane) which sheds in a few days.
Bullous ichthyosis.
This is another rare red ichthyosis which causes blistering, fragile skin early in infancy and thick scaling, especially around the joints later on.
Harlequin ichthyosis.
This condition is fortunately an extremely rare but severe ichthyosis which causes thick plates of scale and severe complications at birth. Many affected babies do not survive.
Netherton's syndrome.
Is made up of red inflamed scaly skin from birth, fragile spiky hair and difficulty gaining weight in early childhood.
Sjögren-Larsson syndrome.
Another condition that also produces scaling and thickening of the skin which may not be obvious until a few months of age. Affected babies also have a type of cerebral palsy.
Conradi-Hünermann syndrome, Neutral lipid storage disease and KID syndrome.
These are very rare and associated with other medical problems.