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Meet our Celebrity Supporters
Walk for Skin in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.
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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.
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The Support Group was set up to help sufferers and families affected by ichthyosis.
We currently do the following for our members:
- Provide a quarterly newletter.
- Put forward your questions to our Medical Advisory Board (MAB) which is comprised of some of the UK's leading dermatologists.
- We have a National Contact who is normally the first person that new members will speak to.
- A network of Regional Representatives who will keep in touch with members in their areas.
- We attend Skin Information Days that are held all over the Uk and run by the Skin Care Campaign to help raise awareness of the ichthyosis family of conditions.
- We also attend the annual British Association of Dermatologists (BAD) Conference to help raise the profile of the support group