Would you, or is there a young member in your family, who would like to help influence the future of the ISG, and give us a valuable insight into what they/you want from the organisation?
An exciting new initiative of the ISG is to create a ‘youth forum’ for ichthyosis in the UK and Ireland, and to be directly involved in the planning and influencing of forthcoming ISG events, including our family days and fundraising.
If you are under 21, or your child(ren) are between the ages of 13 and 20 and would like to get involved with helping to mould the future direction of the ISG, please email firstname.lastname@example.org.
ISG member Lauren has lots of ideas for the Youth Forum and is keen to get other young people involved and talking. Please read the message from Lauren below.