2022 is the ISG's 25th Anniversary Year and to celebrate this we are aiming to raise a minimum of £25,000, and we need your help!

Could you donate £25 or sign up to give £2.50 per month, hold a fundraising event or take on a challenge to help raise funds for ichthyosis research and provide vital advice, information and a support network for families affected by ichthyosis?

Currently there is no cure for ichthyosis and in a recent survey those affected by the condition rated an improvement in treatments as their top priority for research funding.

The ISG fund research, and in 2022 we are teaming up with the British Skin Foundation to award £10,000, but we need your help to enable us to do more.

We have a very special family who hold an annual 'coffee morning' like no other. We are indebted to this family for everything they do, but they know we need to raise a lot more to fund significant research to improve the lives of those living with ichthyosis.

"When our Son was diagnosed with ichthyosis many years ago we didn't know where to turn. The ISG provided us with both support and information to help us better understand the condition. That enabled us to to provide better care for his needs. We feel it's important to fundraise for the ISG so that we can help other families in our situation in the future".

- Edel and John Kenny

To help raise funds for our 25th Anniversary Year Appeal please donate below.

Make a donation

If you'd like to get sponsored for an event you're holding or a challenge you are taking on this year, you can set up a fundraising page below.

Set up a fundraising page

Or, if you would like to show your support for someone taking on a challenge click here.

Whether you are making a valuable donation, are setting up a fundraising page for a physical challenge, or setting up an event fundraising page, here you can do just that. Join #TeamISG.

Thank you for your support!

If you are holding a fundraising event you might like to set up a fundraising page to collect donations online. This is especially helpful for supporters who do not carry cash, or are unable to attend your event.  They can simply scan the QR code to make a donation. We can help set you up with your own unique fundraiser QR code or you can use our QR code linking directly to our 25th Anniversary Appeal like this one. You may also like to use our text to donate details. All donors need to do is send a text message from their mobile phone to a special, 5 digit text message number. The donation gets added to their pay monthly bill or taken off their pay as you go credit.

Example of a QR code

Example of a Text to Donate code

Text SUPPORTISG to 70085 to donate £5

If you need any help please call us.

Disclaimer : Any donations received into our 25th Anniversary Appeal will help us continue supporting people affected by ichthyosis via our information and support network.