We have teamed up with Changing Faces who will be running an interactive workshop for parents and young people, consisting of two sessions, offering self-esteem and confidence building techniques during the online ISG Family Day, Saturday 26th September 2020. These sessions are relevant to young people affected by ichthyosis aged 10-16 years as well as their parents. Parents of younger children may also benefit from the sessions in preparation as their children get older and become more aware of their condition.

The first session will start at 11am and finish at 12 midday and will be facilitated by Julie Carr, Senior Wellbeing Practitioner from Changing Faces and supported by ISG Trustee, Sarah Griffiths-Little and Liz Dale, ISG Office Manager and parent of a teen with ichthyosis. In this session we aim to cover areas you would like to discuss and gain support with in relation to dealing with other people’s reactions to ichthyosis such as staring, comments, fear of being judged and worries about how to describe ichthyosis to others. The session will discuss issues people are facing and offer techniques to help individuals deal with these.

At the end of the first session there will be a two hour break (during which you may want to join the 1 hour general discussion group with other ISG members) before the second session begins at 2pm. We will ask you to go away and reflect on the session, what was discussed and have any questions ready for when we reconvene at 2pm. It may also be useful during this break to think about ways to describe your skin and ways to reassure and distract people from focussing on negativity.

At 2pm we will begin the second session (the follow up session) and we do encourage those attendees from the first session to re-join at 2pm. During this session we will be reflecting on discussions from the morning and how we might use these techniques in difficult social situations. The aim of this session will be to provide ideas and ways of responding to other people’s reactions to ichthyosis and how to feel more confident in living with ichthyosis, looking at ways to be more confident with body posture, eye contact and self-talk. We will look at, and discuss examples of responses and share experiences of how parents and children have coped in such situations.

Following these sessions we will be able to provide details of organisations that may be able to help with issues such as bullying or if further support with mental health may be needed, and of course the ISG will be available to answer any further questions and provide support where needed. An email summary of the sessions will also be sent out to all attendees, which will include sign posting to online resources that may help and support the issues discussed during the workshop.

To register for this workshop please click here

For more information about the online ISG Family Day 2020 click here