Newsletter Archive

2014

2013

June_2013_NLA_Special_Edition

September_2013_NLA_Special_Edition

2012

2011

Spring_2011_Newsletter

2010

2010_Summer_newsletter

Older

2009_Winter_newsletter

Conference_newsletter

Latest

Climb Snowdon Challenge

Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021.
Online ISG Family Day 2020 - Saturday 26th September

Online interactive group discussion sessions providing support to those affected by ichthyosis.
ACT It Out

Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app.
Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others.

Related

Most read

Accessibility
Donate

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.
Privacy Policy
Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.
The Giving Room

If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.
Cookie Policy
Example - Our impact

Inspire visitors with all the amazing change you've achieved. It's your chance to show off!
Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Example - Story/testimonial tips

Inspire visitors with real stories that humanise the impact you have, then call them to action
Raising awareness with Theo

Colour Theo in to raise awareness for Ichthyosis Awareness Month and display him in your windows alongside your rainbows.

ACT It Out

Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app. Read more