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  1. Caring For Ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed.

There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.   A treatment that works for one person doesn’t necessarily work for another. Because of this, treating ichthyosis can be a process of trial and error, and it can be frustrating and may take some time to find something that works best for you.

There may be times when your ichthyosis gets you down, and motivation to carry out the daily routines involved may be difficult at times, parents may become frustrated when trying to motivate a child with ichthyosis. However, it’s important that you maintain your treatment routine and regularly see your doctor to review your condition, and be honest about your treatment routine. It’s the best way of making sure you get to try as many treatments as possible, and find one that makes a difference to you.

Most people with ichthyosis regularly see a dermatologist to help them understand and manage their condition. Ichthyosis treatments are usually topical (applied to the skin) which can come in different formulations (creams, ointments, gels, etc). If your ichthyosis is severe and difficult to manage the thickness of the skin, your doctor may prescribe oral medication such as retinoids to help reduce the scaling, or if various types of topical treatments aren't as effective used alone. 

Caring for your ichthyosis is important to both your physical and mental health and if you have any concerns about caring for your ichthyosis you must talk to your doctor.

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Summary of Ear Care in Ichthyosis Discussion Sessions

Summary of Ear Care in Ichthyosis Discussion Sessions

On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care. Read more

Published: 21st April, 2021

Updated: 12th November, 2021

Author: Liz Dale

ISG's 25th Anniversary Year Appeal

ISG's 25th Anniversary Year Appeal

2022 is the ISG's 25th Anniversary Year and to celebrate this we are aiming to raise a minimum of £25,000. We need your help! Here you can make a donation, start a regular donation or set up a fundraising page.. Read more

Donate Fundraise

Published: 14th August, 2021

Updated: 10th April, 2022

Author: Mandy Aldwin-Easton

25th Anniversary Year Merchandise

25th Anniversary Year Merchandise

Free delivery on orders to help you raise awareness and funds for ichthyosis with our very special anniversary merchandise and collection box Read more

Published: 14th April, 2022

Updated: 28th April, 2022

Author: Mandy Aldwin-Easton

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