Skip over main navigation
  • Sign up
  • Log in
  • Basket: (0 items)
Ichthyosis Support Group - People who care about ichthyosis
  • Search
  • Facebook
  • Twitter
Become a member Contact Us Donate
Menu
  • About Us
    • What We Do
    • Our Impact
    • Where We Work
    • History
    • Awards
    • Our Team
      • Trustees
      • Staff
  • What Is Ichthyosis
  • Caring For Ichthyosis
    • Condition Information
    • Inheritance & Genetics
    • Treatments
    • Parents
    • Talking to Your Doctor
    • Prescribing Issues
    • General Information
  • Get Help
    • Become A Member
    • Member Stories
    • Helpline
    • Other Sources Of Help
  • Support Our Work
    • Make a Donation
    • Fundraise for Us
      • Set Up A Fundraising Page
      • Our Fundraisers
    • Fundraising Ideas
      • Online Fundraising
      • Corporate Charity Support Pack
      • Fundraising Pack
      • Play Unity Lottery!
    • Raise Awareness
      • Raising Awareness
      • Ichthyosis Awareness Month (IAM)
      • Share Your Story With The Media
    • Volunteer
    • Corporate Support
  • Events
    • Member Events
    • Fundraising Events
  • Latest
    • Latest News
    • ISG Newsletters
    • Research
      • Ichthyosis Related Research
      • Participate In Research
      • Research Funded By The ISG
    • In The Media
      • Tell Your Story
      • Case Studies
  • Shop
  • Admin
    • Log in
  • Basket: (0 items)
  1. Caring For Ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed.

There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.   A treatment that works for one person doesn’t necessarily work for another. Because of this, treating ichthyosis can be a process of trial and error, and it can be frustrating and may take some time to find something that works best for you.

There may be times when your ichthyosis gets you down, and motivation to carry out the daily routines involved may be difficult at times, parents may become frustrated when trying to motivate a child with ichthyosis. However, it’s important that you maintain your treatment routine and regularly see your doctor to review your condition, and be honest about your treatment routine. It’s the best way of making sure you get to try as many treatments as possible, and find one that makes a difference to you.

Most people with ichthyosis regularly see a dermatologist to help them understand and manage their condition. Ichthyosis treatments are usually topical (applied to the skin) which can come in different formulations (creams, ointments, gels, etc). If your ichthyosis is severe and difficult to manage the thickness of the skin, your doctor may prescribe oral medication such as retinoids to help reduce the scaling, or if various types of topical treatments aren't as effective used alone. 

Caring for your ichthyosis is important to both your physical and mental health and if you have any concerns about caring for your ichthyosis you must talk to your doctor.

Back to top

Showing 10 of 0

Latest

  • Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Participants wanted to take part in an online survey for caregivers of children affected with ichthyosis

  • WaterSure Scheme

    WaterSure Scheme

    WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills.

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Most read

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

  • Accessibility

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • Donate

    Donate

    As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

  • Privacy Policy

  • Body Image Dissatisfaction

    Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

  • The Giving Room

    The Giving Room

    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

  • Cookie Policy

  • Example - Our impact

    Inspire visitors with all the amazing change you've achieved. It's your chance to show off!

  • Meet our members

    Meet our members

    Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Seasonal Winter Get Together

Seasonal Winter Get Together

Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz. Read more

Published: 20th November, 2020

Author: Mandy Aldwin

Related topics:
  • Latest News
  • Homepage-Latest-Events

Make a donation

Please select a donation amount (required)
Set up a regular payment Donate

Find us

Postal Address
Ichthyosis Support Group
PO Box 1242
Yateley
GU47 7FL

+44 (0)845 602 9202
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Useful links

  • General Enquiries Form
  • Become A Member Form

© Copyright 2015 Ichthyosis Support Group (ISG) Registered Charity Number: 1142457
Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904