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Ichthyosis Support Group - People who care about ichthyosis
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Where we work

Ichthyosis Support Group has been working hard for over 20 years to make life better for its members and everyone affected by ichthyosis. Our charity is passionate and determined to improve the quality of life for people who have to cope with this very difficult and debilitating long-term health condition. It is incredibly tough on both the person with ichthyosis, especially children, and their families.

We provide an extensive range of ichthyosis information and advice, services and resources, which we distribute across our various communication channels and networks. We also work hard to give a voice for people with ichthyosis, raising awareness of the condition, support research into new treatments and campaign for better medical care.

Here are some highlights of what we do to make a difference:

  • We provide reliable, evidence-based information and advice through our website, social media channels, publications and Newsletters.
  • we offer support and information to individuals, families, medical professionals and schools.
  • We offer individualised advice through our Helpline.
  • We raise awareness of ichthyosis and work with key health officials on strategic issues.
  • We work closely relevant medics, phamaceutical companies and umbrella organisations.
  • We campaign for better medical care for people with ichthyosis.
  • We promote and contribute to research relating to ichthyosis.
  • We work with other ichthyosis patient groups around the world.

Published: 22nd October, 2019

Updated: 22nd May, 2020

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    As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

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    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

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    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

  • Meet our members

    Meet our members

    Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

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Ichthyosis Support Group
PO Box 1242
Yateley
GU47 7FL

+44 (0)845 602 9202
[email protected]

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© Copyright 2015 Ichthyosis Support Group (ISG) Registered Charity Number: 1142457
Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904