There is no reason to suspect that just having ichthyosis puts you at greater risk of catching COVID-19. Please read our full advice. Read more
Reluctantly we have decided to cancel the ISG Family Day which had been rescheduled for Saturday 26th September 2020 due to the changeable and ongoing concerns regarding Covid-19 Read more
There is no cure for ichthyosis, but it can be treated and managed.
There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more
Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more
Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app. Read more
Following the huge success of our first quiz back in May we invite you to meet up virtually with your "ichthyfamily" for this fun, exciting family friendly quiz on Saturday 26th September. Read more
Online interactive group discussion sessions providing support to those affected by ichthyosis. Read more
Interactive workshop for parents and young people, consisting of two sessions, offering self-esteem and confidence building techniques on Saturday 26th September. Read more