The dermatology team from Birmingham Children's hospital shared their expertise with ISG members and answered questions to help them manage their hair and scalp problems. Read more
SOLD OUT but more arriving soon. Place your order now. -Luke and the tiger is an inspirational storybook about a boy with ichthyosis for children aged 3-7 years. On his adventure Luke realises he is not the only one with a special skin. Read more
2022 is the ISG's 25th Anniversary Year and we asked you to help us design a logo to use throughout this celebratory year. We have a winner! Read more
There is no reason to suspect that just having ichthyosis puts you at greater risk of catching COVID-19. Please read our full advice. Read more
There is no cure for ichthyosis, but it can be treated and managed.
There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be raising free donations for Ichthyosis Support Group with Easyfundraising? Read more
Watch this online webinar with Professor Edel O'Toole and researcher Dr William Davies discussing ichthyosis and answering viewers questions. Read more
Celebrate our 25th Anniversary and tick 'Climb a Mountain' off your bucket list! Join us for a challenge to remember on 1st May 2022. Read more