Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.


Author: Liz Dale

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!



Target amount: £0.00

Amount raised: £1,107.48

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.


Author: Mandy Aldwin-Easton

Impact of ichthyosis

3 hrs

is the average time people spend a day treating their skin


is the collective number of different emollients used by members


of people stated having ichthyosis affects more than just their skin

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New stories

Latest events

  • Challenge 25

    Sign up to Challenge 25. Pledge to walk, jog or run 2.5 miles a day, dancing for 25 minutes, or baking 25 cakes to sell for Ichthyosis Support Group Read more

  • Thames Bridges Trek - 25km

    In our 25th Anniversary Year, celebrate with us on Saturday 10th September on a 25km across London's iconic bridges. Read more

  • Children's Camps 2022

    The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthtyosis aged 8-16 years. Read more