We are starting off this year's Ichthyosis Awareness Month (IAM) 2021 with a virtual Balloon Race on Saturday 1st May 2021. Read more
Do you have questions about Eye Management and Care in Ichthyosis? We invite you to participate in a Zoom session with us and an Ophthalmologist on Saturday 17th April at 10.00am BST. Read more
Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency. Read more
Some people with ichthyosis are experiencing problems obtaining cream, lotions and/or clothing garments on prescription from their GP. Read more
There is no cure for ichthyosis, but it can be treated and managed.
There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid. Read more
WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more
We would like to know which areas of research are of most interest to you, and what type of research you would like to see funded. Read more
Celebrate our 25th Anniversary and tick 'Climb a Mountain' off your bucket list! Join us for a challenge to remember on 1st May 2022. Read more
2022 is the ISG's 25th Anniversary Year and we'd like you to help us design a logo we will use throughout this celebratory year. Read more