Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges. Read more
Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition. Read more
Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible. Read more
Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other. Read more
There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Practical tips for enjoying a holiday with ichthyosis, including what to pack and how to plan, so travel is smooth and stress-free Read more
Why our presence at key dermatology events matter more than ever. Read more
Early findings from an ISG-funded nationwide ichthyosis study, using data from over 57 million people in England to build the most accurate picture to date. Read more
Discover how the Ichthyosis Support Group (ISG) brings people together, offering support, understanding, and connection. Hear how the community shapes research, improves care, and inspires hope for families and individuals. Read more
This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more
Giving people with ichthyosis, parents, and caregivers a platform to share their stories through a podcast series. Read more
The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthyosis aged 8-16 years. Read more
Discover ISG's 2026 events: Cuppa & Chat mornings, online sessions, regional gatherings, and children's activity camps. Stay connected and involved! Read more
Are you up for the challenge? Whether you run, trek, walk, jump or cycle every step or leap to take will help us give individuals and families the support and resources they deserve. Read more
During Ichthyosis Awareness Month, you can help raise understanding and support by bringing Theo, the Ichthyosis Support Group mascot, to life. Read more