To bring together our younger members we are hosting an online virtual camp for children aged 16 years and under on Saturday 15th May 2021 at 11am (BST) via Zoom. Read more
It's Ichthyosis Awareness Month! Colour Theo in to raise awareness and display him in your windows. Read more
Pass the Pound is an easy way to help donate money to the ISG and raise awareness during May, Ichthyosis Awareness Month. Read more
Paint rocks with the ISG logo and website and place them while you're out and about to help raise awareness. Read more
There is no cure for ichthyosis, but it can be treated and managed.
There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid. Read more
WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more
We would like to know which areas of research are of most interest to you, and what type of research you would like to see funded. Read more
On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care. Read more
Celebrate our 25th Anniversary and tick 'Climb a Mountain' off your bucket list! Join us for a challenge to remember on 1st May 2022. Read more
2022 is the ISG's 25th Anniversary Year and we'd like you to help us design a logo we will use throughout this celebratory year. Read more
Do you have questions about Hair and Scalp Care in Ichthyosis? We invite you to participate in a Zoom session with us, Consultant Dermatologists and Dermatology Nurses on Saturday 8th May at 10.00am BST. Read more