Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.

Published:

Author: Liz Dale

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!

Published:

Author:

Target amount: £2,147,483,647.00

Amount raised: £819.98

Fundraise

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Published:

Author: Mandy Aldwin

Impact of ichthyosis

3 hrs

is the average time people spend a day treating their skin

45

is the collective number of different emollients used by members

97%

of people stated having ichthyosis affects more than just their skin

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New stories

  • New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid. Read more

  • WaterSure Scheme

    WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more

  • Prescribing issues - NHS England

    Some people with ichthyosis are experiencing problems obtaining cream, lotions and/or clothing garments on prescription from their GP. Read more

  • Funding Ichthyosis Related Research

    We would like to know which areas of research are of most interest to you, and what type of research you would like to see funded. Read more

Latest events

  • Climb Snowdon Challenge

    Celebrate our 25th Anniversary and tick 'Climb a Mountain' off your bucket list! Join us for a challenge to remember on 1st May 2022. Read more

  • 25th Anniversary Logo Competition

    2022 is the ISG's 25th Anniversary Year and we'd like you to help us design a logo we will use throughout this celebratory year. Read more

  • Eye Management and Care in Ichthyosis Discussion

    Do you have questions about Eye Management and Care in Ichthyosis? We invite you to participate in a Zoom session with us and an Ophthalmologist on Saturday 17th April at 10.00am BST. Read more

  • ISG Virtual Balloon Race – May 1st 2021

    We are starting off this year's Ichthyosis Awareness Month (IAM) 2021 with a virtual Balloon Race on Saturday 1st May 2021. Read more