Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.

Published:

Author: Liz Dale

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!

Published:

Author:

Target amount: £2,147,483,647.00

Amount raised: £0.00

Fundraise

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Published:

Author: Mandy Aldwin

Impact of ichthyosis

3 hrs

is the average time people spend a day treating their skin

45

is the collective number of different emollients used by members

97%

of people stated having ichthyosis affects more than just their skin

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New stories

  • Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more

  • Mental Health of Individuals With Facial Differences

    Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more

  • ACT It Out

    Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app. Read more

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