Ichthyosis Support Group - People who care about ichthyosis

25th Anniversary Year Merchandise

Free delivery on orders to help you raise awareness and funds for ichthyosis with our very special anniversary merchandise and collection box Read more
Thames Bridges Trek - 25km

In our 25th Anniversary Year, celebrate with us on Saturday 10th September on a 25km across London's iconic bridges. Read more
ISG's 25th Anniversary Year Appeal

2022 is the ISG's 25th Anniversary Year and to celebrate this we are aiming to raise a minimum of £25,000. We need your help! Here you can make a donation, start a regular donation or set up a fundraising page.. Read more
Target £25,000 Raised so far £7,451 £8,834 incl. Gift Aid
Please select a donation amount (required)
£10 Can fund an information pack for schools and families affected by ichthyosis, helping the child attend lessons and manage their condition with the support of the school.

£25 Can fund the initial provision of support, information and advice to one new family affected by ichthyosis.

£50 Can fund the initial provision of support, information and advice to two new families affected by ichthyosis.

£100 Can fund 10 information packs for schools and families affected by ichthyosis, helping the child to attend school and manage their condition with the support of the school.

Other

Set up a regular payment

Donate now Fundraise Read More
Children's Camps 2022

The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthtyosis aged 8-16 years. Read more

Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Impact of ichthyosis

3 hrs	is the average time people spend a day treating their skin
45	is the collective number of different emollients used by members
97%	of people stated having ichthyosis affects more than just their skin

Make a donation

Please select a donation amount (required)

£5

Every single £1 donated helps us provide support to individuals and families affected by ichthyosis.

£10

Can fund an information pack for schools and families affected by ichthyosis, helping the child attend lessons and manage their condition with the support of the school.

£25

Can fund the initial provision of support, information and advice to one new family affected by ichthyosis.

Other

Set up a regular payment Donate

New stories

Recruiting participants for online group interview study

Are you an English-speaking adult (18+) with a skin condition? Would like to take part in an online group activity to develop a smartphone app supporting people to live well with skin conditions? Read more
ISG Cake Toppers

Buy Ichthyosis Support Group and 25th Anniversary cake toppers at a discounted rate from Edibilis. Read more
Mindfulness research study

Are you a parent or carer of a child with ichthyosis aged under 16 years old? Would you like to participate in this research by taking part in an online mindfulness course? Read more
An investigation into memory, cognitive function and mood in ichthyosis

The effects of genetic changes associated with ichthyosis on memory, cognition and mood in being investigated, and we need you to to participate in the latest research. Read more

Latest events

Challenge 25

Sign up to Challenge 25. Pledge to walk, jog or run 2.5 miles a day, dancing for 25 minutes, or baking 25 cakes to sell for Ichthyosis Support Group Read more
Thames Bridges Trek - 25km

In our 25th Anniversary Year, celebrate with us on Saturday 10th September on a 25km across London's iconic bridges. Read more
Children's Camps 2022

The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthtyosis aged 8-16 years. Read more

Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Impact of ichthyosis

3 hrs

45

97%

Make a donation

New stories

Latest events