Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency. Read more
Some people with ichthyosis are experiencing problems obtaining cream, lotions and/or clothing garments on prescription from their GP. Read more
WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more
There is no reason to suspect that just having ichthyosis puts you at greater risk of catching COVID-19. Please read our full advice. Read more
There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this. Read more
Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021. Read more