Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.


Author: Liz Dale

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!



Target amount: £2,147,483,647.00

Amount raised: £0.00


Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.


Author: Mandy Aldwin

Impact of ichthyosis

3 hrs

is the average time people spend a day treating their skin


is the collective number of different emollients used by members


of people stated having ichthyosis affects more than just their skin

Make a donation

Please select a donation amount: *
Set up a regular payment Donate

New stories

  • Amazon Smile

    Shop via AmazonSmile and 0.5% of the purchase price of eligible products will be donated to your chosen charity. Read more

  • The Giving Room

    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds. Read more

  • Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more

Latest events

  • Thames Bridges Trek

    Join 2000 trekkers on 12th September 2020 as we venture across the Capital taking in unrivalled views of the skyline from its best vantage points. Read more

  • Climb Snowdon Challenge

    Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021. Read more

  • Go Karting Challenge

    With the huge success of last year’s event we are looking to gain interest from participants to run another Go Karting Charity Fundraising Event on 18th October 2020 at Capital Karts. Read more