Committed to the ongoing provision of an information network and support structure for individuals and families affected by ichthyosis

Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.

Published:

Author: Liz Dale

Fundraise for the Ichthyosis Support Group

Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!

Published:

Author:

Target amount: £0.00

Amount raised: £4,083.47

Fundraise

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Published:

Author: Mandy Aldwin-Easton

Impact of ichthyosis

3 hrs

is the average time people spend a day treating their skin

45

is the collective number of different emollients used by members

97%

of people stated having ichthyosis affects more than just their skin

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Latest news

  • Publish a patient perspective article for the BJD

    The British Journal of Dermatology (BJD) are looking for articles written by dermatology patients (can be co-authored with a clinician), carers, and patient societies. Read more

  • Living with ichthyosis

    3 stories of living with ichthyosis. Talking openly can provide comfort to others, and help raise awareness Read more

  • Amanda's story

    Amanda talks in depth about living with Epidermolytic ichthyosis. Read more

Get involved

  • Members Events 2024

    Put these dates in your calendar to join our member events in 2024 Read more

  • ISG Video Project

    We have been awarded funding by the British Association of Dermatologists (BAD), to produce a series of videos portraying life with ichthyosis from the perspective of various types, ages, gender and ethnicity. Would you like to feature as one of our stories? Read more

  • Host A Tea Party

    Hold a fundraising tea party or bake sale to enable further research into ichthyosis, and help us continue supporting families and individuals affected by ichthyosis. Read more

  • Youth Forum - British Society of Paediatric and Adolescent Dermatology (BSPAD)

    Are you aged 16-25? Are you living with a skin or hair condition? The BSPAD would like to include the voices and priorities of young people in their work. Read more