Get together with your "Ichthyfamily", family and friends for this exciting, fun, Winter quiz on Sunday 12th December at 5pm. Read more
Enter for your chance to win a prize! Over £400 worth of prizes available. Read more
The dermatology team from Birmingham Children's hospital shared their expertise with ISG members and answered questions to help them manage their hair and scalp problems. Read more
SOLD OUT but more arriving soon. Place your order now. -Luke and the tiger is an inspirational storybook about a boy with ichthyosis for children aged 3-7 years. On his adventure Luke realises he is not the only one with a special skin. Read more
There is no cure for ichthyosis, but it can be treated and managed.
There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Set up a fundraising page on the ISG website. Using our online form will be the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!
Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.
Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be raising free donations for Ichthyosis Support Group with Easyfundraising? Read more
If your child has been diagnosed with a skin condition, then you are invited to take part in a research study exploring the experiences of psychosocial support for children and their carers. Read more
Watch this online webinar with Professor Edel O'Toole and researcher Dr William Davies discussing ichthyosis and answering viewers questions. Read more
Celebrate our 25th Anniversary and tick 'Climb a Mountain' off your bucket list! Join us for a challenge to remember on 1st May 2022. Read more