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A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this.
Donations for Steve to the ichthyosis society

My son Steve Evans unfortunately recently died of covid, he had ichthyosis. We would like to raise more awareness of the issues that people have with this disease..
Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.
Prescribing issues - NHS England

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Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.
Seasonal Winter Get Together

Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.
Donate

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.
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Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.
The Giving Room

If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.
Cookie Policy
Example - Our impact

Inspire visitors with all the amazing change you've achieved. It's your chance to show off!
Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.