Our team

Latest

Climb Snowdon Challenge

Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021.
Online ISG Family Day 2020 - Saturday 26th September

Online interactive group discussion sessions providing support to those affected by ichthyosis.
ACT It Out

Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app.
Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others.

ACT It Out

Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app. Read more