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  1. About Us
  2. Our Team
  3. ISG Ambassadors

ISG Ambassadors

ISG Ambassadors

In 2021 the Ichthyosis Support Group (ISG) introduced ‘Ambassadors’ to its team of volunteers.   The aim is to include ISG members in a proactive way to engage and support people with ichthyosis.  We currently have a small number of volunteer Ambassadors who work tirelessly as advocates for ichthyosis and the ISG, but we would certainly welcome more!

Would you like to feel more empowered and support the ISG in a more formal way? Why not become an ISG Ambassador? We already have a number of ISG Ambassadors, but we need more to really fly the flag for the ISG and for patients with all types of ichthyoses. You can raise awareness, get involved in fundraising, support ISG activities and events. Be sure to follow us on all social media channels and share our posts, because you can reach people outside the ichthyosis community. Check the ISG website www.ichthyosis.org.uk for information and news to share.  By doing this you'll be helping to keep other members and those affected up to date with research studies, surveys, events and much more. Being an ISG Ambassador gives you the power to help educate and support others. For more information or to register your interest please email us at: [email protected]

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Latest

  • Faces of Ichthyosis: Paige

    Faces of Ichthyosis: Paige

    Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges.

  • Faces of Ichthyosis: Elliot

    Faces of Ichthyosis: Elliot

    Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition.

  • Faces of Ichthyosis: Anthony

    Faces of Ichthyosis: Anthony

    Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible.

  • Faces of Ichthyosis: Rosemary

    Faces of Ichthyosis: Rosemary

    Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other.

Most read

  • Treatments Used in Ichthyosis

  • Palmoplantar Keratoderma (PPK)

  • X-linked Ichthyosis

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Harlequin Ichthyosis

  • Inheritance of Ichthyosis Factsheet

  • Ichthyosis Overview

  • Eye Management in Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more

Published: 3rd September, 2025

Updated: 4th October, 2025

Author: Mandy Aldwin

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Ichthyosis Support Group, First Floor Rubra One, Mulberry Business Park, Fishponds Road, Wokingham RG41 2GY UK

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[email protected]

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