Ichthyosis Awareness Month (IAM)

During Ichthyosis Awareness Month (IAM) we will be encouraging everyone to get involved in raising awareness and fundraising. We will have all kinds of things going on and below are a few ideas. We are also introducing some new initiatives to help you manage your ichthyosis. Scroll down for things you can get involved in.

Here are some quick and easy ways you get can involved and many of these don't only have to take place during May...

Let the world know where you are from and that you have or support someone with ichthyosis.

Visit and share to the ISG Facebook page and ISG on Instagram.

Use our IAM social media graphics all month long!

Are you on Facebook or Instagram? IAM is Going Global! Use #IchthyosisAwareness and #IAM2026 in your posts.

Bake Holiday Weekend – love baking? Why not bake during the bank holiday weekends for the ISG? Sell your cakes, donate the proceeds to the ISG and raise awareness for people living with ichthyosis. Donate your fundraising here.

Educate by distributing leaflets, chat with friends and work colleagues about ichthyosis and how it affects you or someone you know. Send us your story of living with ichthyosis and we will publish it online, don't forget to send us a photo!

Pledge to help us continue to support families and individuals living with ichthyosis by signing up to give a monthly donation.

Meet Up: Organise a local member meet up, take photos and share online. Encourage members near you to get together! Remember to use the hashtag #ichthyosisawareness

Follow us on Facebook, X (formerly) Twitter and Instagram to keep up to date with ongoing activities you can get involved in.