Tell us Your Story
Please write to us with your story (500 words approx) of living with ichthyosis, include a photo if you'd like to! Email it to us, send it via our contact form or send it in the post. It may be featured in the newsletter and on the website.
You may have seen some photos of people with ichthyosis, but here you can meet some of the families behind the photos. Read what it is really like to have a child with ichthyosis, or to live with the condition from the people who know.
Images from meet our members