I joined the ISG in September 2014 as a Trustee following the Annual ISG family day in Newcastle 2014. My wife and I attended our first ISG conference following the birth of our baby boy, Ibrahim, born in June 2012. After attending the family conference it made us realise that there was greater support out there both from within the ISG but also other members affected with the same condition. It was completely a new experience for us living with Ichthyosis and having attended, by the end of two days I was totally delighted and inspired. Being a part of the ISG is a extremely feel good factor as I desired the opportunity to make a real difference by helping the people who need it most.