Some people with ichthyosis are experiencing problems obtaining cream, lotions and/or clothing garments on prescription from their GP. Some of these issues are as a result of guidelines issued by NHS England being misinterpreted by your local Clinical Commissioning Group (clinically-led statutory NHS bodies responsible for the planning and commissioning of health care services in your local area/GP).  The British Association for Dermatologists (BAD) www.bad.org.uk and the Dermatology Council for England (DCE) www.dermatologyengland.org.uk have been working with NHS England (NHSE) www.england.nhs.uk for over a year now to publish clarification on the guidance they have issued.  Whilst they are very close to finalising this guidance NHSE have in the interim issued a letter which clarifies the intent of the guidance which is intended to help patients and prescribers to access the treatments that are needed.

Download the template letter