Share your ichthyosis story

Would you like to share your experience of living with ichthyosis?

Please complete our form below to tell us about your story (500 words approx) of living with ichthyosis. It may be featured in our e-bulletin, newsletter and on the website.

We know that by reading other people’s experiences of living with ichthyosis it can be reassuring and of comfort to others.

Tell us Your Story

You may have seen some photos of people with ichthyosis, but here you can meet some of the families behind the photos. Read what it is really like to have a child with ichthyosis, or to live with the condition from the people who know.

Images from meet our members

Click here to meet our members